Blogs - PA Medical Home Initiative for Parents

Free communication devices are available to Pennsylvanians through a generous donation from AstraZeneca.

The Zam Communicator is a lightweight, two-sided communication device that does NOT generate speech. It was developed to help improve communication between patients who are unable to speak and medical professionals. The device offers a keypad for spelling out words and icons representing medic… Continue

Added by Mary RN on October 15, 2009 at 4:30pm — No Comments

Adult Community Autism Program (ACAP)

PENNSYLVANIA DEPARTMENT OF PUBLIC WELFARE BUREAU OF AUTISM SERVICES Adult Community Autism Program (ACAP) Pennsylvania’s Adult Community Autism Program (ACAP) is a way for adults living with an Autism Spectrum Disorder (ASD) to get needed services. The services people who enroll in ACAP will receive are built upon each person’s strengths and determined by each person’s needs. The services are designed to help adults living with ASD be as independent as possible and be involved in communit… Continue

Added by Jaclyn M. Kratzer on September 29, 2009 at 2:09pm — No Comments

IEP tips

Tips for a successful IEP meeting

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Added by Jaclyn M. Kratzer on September 25, 2009 at 1:30am — No Comments

new toys designed for special needs children ( Christmas is right around the corner ! )

The Differently-Abled toy guide from Toys R Us. http://www.toysrus.com/shop/index.jsp?categoryId=3261680 Continue

Added by AprilG on September 10, 2009 at 2:04pm — No Comments

CHADD Meetings

Chester County/Main Line CHADD Calendar of Events For the AD/HD Community Fall/Winter 2009-2010 Separate Monthly Meetings For: · Parents, Teachers & Caregivers of children/teens with AD/HD · Adults with AD/HD · Teens with AD/HD Upcoming Events www.CHADD.org For Adults with AD/HD and Those Who Wish To Support an Adult with AD/HD Time & Location of all meetings (unless specified): 7:00 pm at Kesher Israel Congregation, 1000 Pottstown Pike, West Chester, PA Date: October 13,… Continue

Added by Jaclyn M. Kratzer on September 10, 2009 at 10:30am — No Comments

Congratulations Everyone and Thank You PA Medical Home Initiative!

On September 2008, the PA Medical Home Initiative offered to us this great opportunity. A website where to know each other and share information, stories, concerns, etc. HAPPY FIRST BIRTRHDAY!!!!!!!!!!!! Continue

Added by Ana and Joel Emilio on September 3, 2009 at 12:30am — 1 Comment

Please join us! The Pennsylvania Health Law Project, PA Academy of Pediatrics, PA Department of Heal…

Please join us! The Pennsylvania Health Law Project, PA Academy of Pediatrics, PA Department of Health and the PEAL Center are working together on a Statewide Implementation Grant. The purpose of the grant is to improve services for Children and Youth with Special Health Care Needs (CYSHCN). The first meeting of the Parent/Youth/Professional Forum for the Southeast District will be held: November 2009 Chester County Government Services Center 601 Westtown Road West Chester, PA 19380-0990 Th… Continue

Added by Jaclyn M. Kratzer on August 31, 2009 at 12:47pm — 1 Comment

FREE ON-LINE MODULES ABOUT TRANSITION FROM SCHOOL TO ADULT LIFE

This link connects you to FREE on-line modules that you can access at ANY TIME. The modules provide important information about how families, schools and agencies can work together to plan a child's transition from school to adult life. Hope you have an opportunity to check it out! http://transitioncoalition.org/transition/module_home.php Continue

Added by grace2day on August 23, 2009 at 10:45pm — No Comments

Empathy

I continue to be amazed by the amount of people I meet each day in the human health service industry who somehow form a genuine connection to our family or through meeting Tyler. I thank you from the tips of my toes to the top of my head for learning about, caring about and reaching for the best for my child. I am in debited to you and every night to the universe I whisper your name and wish upon a star that your light continues to shine on everyone you touch with your warmth and kindness. I… Continue

Added by Donna Kay Langan on August 20, 2009 at 7:51pm — No Comments

Going to Mediation-looking for advice, hints and prayers!

Hi All, I am new to this site, and this is my first time posting. My son is 14 years old and has cp. He is severely delayed, and has been in an MDS class in a regular ed school for all of his schooling years, instead of the public special ed school, because we wanted him to have to have the opportunity to interact with regular ed kids. We live in Chester County, PA. There are only 2 MDS classes in the county that are in regular ed schools, and Chesco is a big county. They want to change his pr… Continue

Added by Laura on August 19, 2009 at 9:02am — No Comments

Alert

Contact your legislators “NOW” SB 850 calls for the elimination of the ACT 150 attendant care program…many of our consumers and co-workers could loose their attendant care, thus possibily loosing their jobs, and face living in a nursing home. Rally the troops this is what we do!!!!!!! Continue

Added by Jaclyn M. Kratzer on July 9, 2009 at 2:08pm — No Comments

Budget

The following alert is from the Disability Budget Coalition: As the state fiscal year ends, PA appears to be no closer to resolution of our budget crisis. We have a $3.2 billion shortfall that must be addressed. The Governor and House Democratic leadership are calling for increasing the personal income tax from 3.07% to 3.57% as well as other “revenue enhancers” and a number of budget cuts. The Senate and House Republicans have said that they won’t support any tax increase. The first round of… Continue

Added by Jaclyn M. Kratzer on July 1, 2009 at 2:53pm — No Comments

PA education news

IF EDUCATION FUNDING INADEQUATE, RENDELL PREPARED TO WAIT UNTIL LABOR DAY FOR BUDGET Gov. Ed Rendell reportedly said Friday afternoon that he is willing to stall budget negotiations until Labor Day if he is unsatisfied with education spending. Labor Day is Sept.7. The fiscal year starts July 1. Matt Brouillette, president and CEO of the conservative Commonwealth Foundation, initially posted Gov. Rendell’s comment on Twitter. Rendell on Friday joined Gerald Zahorchak, secretary of the Department… Continue

Added by Jaclyn M. Kratzer on June 15, 2009 at 10:27am — No Comments

Supreme Court considering who pays for special education at private schools

The US Supreme Court is hearing a case over an Oregon school district's failure to address a special needs student's learning problems. The child has Attention Deficit Hyperactivity Disorder. The family is seeking reimbursement of the cost of private school tuition at more than $5,000 per month. The case seems to hinge around the fact that the parents did not work with the district before enrolling their child in the private school. The district insists that they should have given the public sc… Continue

Added by Lucinda Wiebe on May 31, 2009 at 8:51pm — No Comments

Community Project: Tips for traveling with a child who has special needs

Hi Everyone, I thought it might be a great idea to take advantage of all the brains and energy we have on this site and start our first ever community project! I know that every single member has something to contribute. In light of the summer "travel season" that will begin soon, this a great time to reflect on successful and unsuccessful trips that you've taken with your children and share your hard-earned wisdom. The question is, how can a parent make traveling with a child with spe… Continue

Added by Deb on May 5, 2009 at 3:00pm — 4 Comments

FREE Emergency cell for families

Participants Receive Over an Hour of Free Talk Time Monthly and Free Wireless Cell Phone PHILADELPHIA -- Today, TracFone Wireless, Inc., America's leading prepaid cell phone provider, announced its launch of SafeLink Wireless[R] in most of Pennsylvania. SafeLink Wireless will serve as the company's distribution of Lifeline - a U.S. government supported program for income eligible households that ensures telephone service is available and affordable for eligible low income households. The SafeL… Continue

Added by Jaclyn M. Kratzer on May 1, 2009 at 3:05pm — No Comments

AUTISM HUB IN ALLENTOWN

It's being called the first facility of its kind in our region. The Autism Resource Community Hub opened Sunday on Hausman Road in Allentown. The facility is also known as ARCH of the Lehigh Valley. Officials call it a one stop shop for autism services. Families will be able to get information and referrals at ARCH, and there is also an outpatient clinic, an after school program, and a six week summer camp. Officials say they've created an environment that should be appealing to kids with autism… Continue

Added by Jaclyn M. Kratzer on May 1, 2009 at 3:02pm — No Comments

WEBINAR ON EMPLOYMENT

Employment Today: Understanding the Current State of Employment for People with Developmental Disabilities TIME & DATE: Thursday, May 7, 2009, 4:00 - 5:00 pm, ET DIAL IN INFORMATION: Dial in information will be emailed to all registered participants. Participation is free, however, participants must register beforehand. To do so, please email walshworks@verizon.net with your name, address and phone number, and put AFP Webinar in the subject line, and you will be automatically registered.… Continue

Added by Jaclyn M. Kratzer on April 20, 2009 at 2:00pm — No Comments

PA DDC Children's Survey

Subject: PA Developmental Disabilities Council Childrens Survey Dear Colleague, My name is Dr. Carol Trivette. My colleagues and I are working with the Pennsylvania Developmental Disabilities Council on a project to identify what parents and practitioners in the different early childhood communities throughout Pennsylvania feel are important outcomes for young children. Input and feedback will be used to develop an instrument that can be used to measure program practices and the child benefits… Continue

Added by Jaclyn M. Kratzer on April 14, 2009 at 11:38am — No Comments

Pittsburgh Special Needs Expo offers resources for children with physical disabilities

An equipment and resource expo for children with physical disabilities is being hosted at The Children's Institute,1405 Shady Avenue in Squirrel Hill, on Wednesday, April 22 from 4:30-7:30 pm. Light refreshments will be provided. For more information please follow this link: Continue

Added by Lucinda Wiebe on April 10, 2009 at 10:30pm — No Comments

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