Don't mind your asking. My oldest has Aspergers, ADHD, Anxiety Disorder, Oppositional Defiance Disorder, GERD, Hiatal Hernia, Erosive Esophagitis. My middle son has Autism, Mild MR, Tourette's, Hiatal Hernia and GERD as well. My youngest has a dairy allergy, but so far aside from some minor sensory and oral motor issues, he isn't showing signs of being on the spectrum and didn't qualify for services since turning 3. I have inoperable cavernous angiomas in the brain and spinal cord which make all this even more difficult to deal with. Thank God for my healthy husband.
Hi Everyone,
I don't want anyone to think that I am ingnoring them.
I came back from Philly with some bad news about my son's eyes.
Then on top of that I found out yesterday that my Grandmother died.
I will email everyone when I can over the next few days.
Thank you for understanding
Lori
That is me, my husband and our 3 sons. The one on the far left is 7. He has severe apraxia of speech with a phonological disorder and ADHD. In the middle is our 9 year old who has Asperger's and something that seems like IED. It sounds like your 15 year old has similar issues. Our 6 year old on the far right is a typical Kindergartener. :)
Hi! thank you!
I have 2 daughters one of them has autism, imperactivity inactive. and some others .. Thanks for writing, and forgive my English is not very good ..i speak spanish very well.
Hi momof5!! My 8 yr old has a cleft palate that has a layer of skin over it so it wasn't diagnosed until he was 2 and had to get his tonsils and part of his adenoids out that we even knew he had a cleft palate. They couldn't take all of his adenoids out due to the cleft palate. They said if they removed all of the adenoids then everytime he ate or drank it would come out of his nose. I was shocked to find out he even had a cleft palate, but it did explain a lot about why I couldn't nurse him and all of his ear infections!! He still has tubes in both of his ears due to ear infections!! The Klippel-Feil syndrome is where the bones in his neck and shoulder are fused together so his one shoulder is always raised. We just have to watch for curvature of the spine when he is older due to the syndrome!! Did your son lose his hearing when he was older or was he born with hearing loss? I think my son Seth has a mild hearing loss due to all of his ear infections. It sounds like you really have your hands full with your children! Maybe we can keep in touch !
Thank you for the welcome! The boy in the picture is my son; he is 11 in that photo, but looks pretty much the same now, at nearly 14, as he did back then. He was all smiles & very excited that day b/c it was the day we brought home his new wheelchair, which you can see in the photo.
A parent or caregiver to a child or youth with special health care needs
If you'd like, please share a little bit about yourself and your child/children.
I have 6 children. Two live out of home and our 20 and 19 years old.
My 15 year old son has Aspergers, ADD and can be very defiant. My 11 year old son has Juv. Glaucoma and my 5 year old son has a cleft, FTT and is hard of hearing.
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I don't want anyone to think that I am ingnoring them.
I came back from Philly with some bad news about my son's eyes.
Then on top of that I found out yesterday that my Grandmother died.
I will email everyone when I can over the next few days.
Thank you for understanding
Lori
I have 2 daughters one of them has autism, imperactivity inactive. and some others .. Thanks for writing, and forgive my English is not very good ..i speak spanish very well.
vic
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