A parent or caregiver to a child or youth with special health care needs
Please share some key areas of interest in the field of child health (for example, transition, autism, special education, etc.)
tracheostomy, ventilator dependent, rare disorders, jeune syndrome,
If you'd like, please share a little bit about yourself and your child/children.
I am the mother of four children. I have three girls ages 15,13, and 8 and one son age 27mo- my son has a condition called jeunes syndrome which requires him to be on a ventilator 24 hrs/day. Joseph is a very busy little boy- I care for him without any outside help, so he is always "on the go".
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