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Laura
  • Female
  • West Chester, PA
  • United States
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A blog post by Laura was featured
Hi All, I am new to this site, and this is my first time posting. My son is 14 years old and has cp. He is severely delayed, and has been in an MDS class in a regular ed school for all of his schooling years, instead of the public special ed scho...
August 21
Laura and Debbi Diilbeck are now friends
August 19
Laura joined Deb's group
CP interest group
This group exists to make it easier to connect with other parents of children with cerebral palsy.
August 19
Laura added a blog post
Hi All, I am new to this site, and this is my first time posting. My son is 14 years old and has cp. He is severely delayed, and has been in an MDS class in a regular ed school for all of his schooling years, instead of the public special ed scho...
August 19
Laura is now a member of PA Medical Home Initiative for Parents
Welcome Them!
February 25

Comment Wall (13 comments)

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At 12:29pm on August 19, 2009, Debbi Diilbeck said…
oh that would be great. Gabrielle is starting aquatic therapy-that we will pay for out of pocket. She goes to school at first step and that is it we dont get info from anyone else really. How do you get involved with brians run??? yes i would love more info!
At 12:19pm on August 19, 2009, Debbi Diilbeck said…
oh that would be great. We are planning to move-primarily to be closer to family and friends-we dont really have anyone else out by us-all in delco. And also our house now has a lot of steps to go up to the bed rooms and and it is getting more dificult to carry gabrielle up the stairs. If you have that info that would be great-especially for if and when we move. I am not really sure what gabrielle qualifies for or not-we just found she was covered for diapers under her 2nd ins keystone mercy-and would have been since she was 3!!!!!
At 11:56am on August 19, 2009, Debbi Diilbeck said…
funny story!!!! did you deliver early? I delivered at 27 weeks-Daniel weighed 1 pound 14 ounces and Gabrielle weighed 1 pound-and even dropped to 13 ounces....my little miracles. I delivered at Lankenau--loved it there. And anytime we have had to go to Chester county-they have been wonderful. Does you son us a lot of adaptive equipment? have you had to make any adjustments to your house?
At 11:43am on August 19, 2009, Debbi Diilbeck said…
oh okay-just curious. yes gabrielle eats everything too-but we dont have to puree anything. Her g tube was put when she turned 2-she only weighed 15 pounds-and we had tried everything-she ate just not enough-so even from the start it was only at night--but then i swear the g-tube jump started her eating and she really put on weight. She is on the charts now-but the tube really helps when she is sick-cause then she doesnt eat anything. We have been so happy with all of her care at CHOP-and fortunatly when she is really sick we can take her to chester co hospital cause their peds floor is CHOP doctors!!!
At 11:26am on August 19, 2009, Debbi Diilbeck said…
oh okay. We do everything at CHOP-we did not have a good experience with Dupont at all. I am curious to see what they say at the CP clinic. Can you tell me more about your son--disability/medical wise? do you have other children/
At 11:10am on August 19, 2009, Debbi Diilbeck said…
she does require assistance with a lot but she trys to do things. She does have a G-tube in but we only use it at night-she eats everything during the day--which she does need some assitance with. She doesnt say much at school-so they have her use some switches but she says more at home-and doesnt use switch toys. We are having an evaluation at the CP clinic at CHOP-next tue-have you been there?
At 10:38am on August 19, 2009, Debbi Diilbeck said…
My daughter was in Kerri's class the last 2 years and now she is moving into Deb's class. She is still not able to walk-she has the concept down-but has weakend trunk muscles that hold her back. She is starting to still much better now. On some levels she is a typical happy 4.5 year old. We go down to OCNJ a lot and she loves to be in the ocean and go on all the rides-the tilt a whirl and roller coaster are her favorites!! She has a twin brother so that helps-she loves to try to imitate him. He does not have any disablities. SHe does have limited vocabulary but she can def get her point across!
At 9:52am on August 19, 2009, Debbi Diilbeck said…
i will have to call them. i do know off hand that Garnet Valley school has an inclusion program-would that be the same? Gabrielle gets -Pt-ot-speech and vision therapy. From a cognitive stand point she is very bright and understands everything-and has very typical age appropriate behavior-she is just has a limited vocab.
At 9:36am on August 19, 2009, Debbi Diilbeck said…
oh okay-that is great to know. We are thinking of moving back to Delco sometime next year-are you aware of any school in delco that do the same??
At 9:24am on August 19, 2009, Debbi Diilbeck said…
what is the MDS? i live in oxford-my daughter is 4.5 and will be 5 in november-she currently goes to the First Step in WC.

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Profile Information

Do you live in Pennsylvania?
Yes
What PA County do you live in?
Chester
(Please select all that apply) I am:
A parent or caregiver to a child or youth with special health care needs
Please share some key areas of interest in the field of child health (for example, transition, autism, special education, etc.)
Cerebral Palsy
If you'd like, please share something fun, cool, or notable about yourself.
I write a blog for Exceptional Parent online (eparent.com). It is a humor blog from the perspective of a special needs parent.

Laura's Blog

Laura

Going to Mediation-looking for advice, hints and prayers!

Hi All,
I am new to this site, and this is my first time posting.

My son is 14 years old and has cp. He is severely delayed, and has been in an MDS class in a regular ed school for all of his schooling years, instead of the public special ed school, because we wanted him to have to have the opportunity to interact with regular ed kids. We live in Chester County, PA. There are only 2 MDS classes in the county that are in regular ed schools, and Chesco is a big county.

They want to change his pr… Continue

Posted on August 19, 2009 at 9:02am —

 
 
 

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