PA Medical Home Initiative for Parents

KerryLiz
  • Female
  • Cheswick, PA
  • United States
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KerryLiz and kellyanne are now friends
May 8
Cheryl Ruoss and KerryLiz are now friends
April 21
A blog post by KerryLiz was featured
My darling gal finally has her casts off after her surgery, but it has been a horrible, pain-filled, sleep-deprived couple of weeks. The surgeon sees no physiological reason for Sarah's discomfort, and I do see a tremendous amount of fear in her. ...
March 31
KerryLiz added a blog post
My darling gal finally has her casts off after her surgery, but it has been a horrible, pain-filled, sleep-deprived couple of weeks. The surgeon sees no physiological reason for Sarah's discomfort, and I do see a tremendous amount of fear in her. ...
March 30
A blog post by KerryLiz was featured
My husband had this bright idea - let's take the kids to see Disney on Ice at the Mellon Arena! The littlest two are VERY excited about this outing tomorrow, and the older two are amused apparently. My Sarah had a surgery on 30 January, a bilatera...
March 5
KerryLiz was featured
March 5
KerryLiz added 4 blog posts
March 5
KerryLiz added the App Daily Flora
March 4
March 4
KerryLiz added the App BuddyPoke!
March 4
KerryLiz joined Deb's group
This group exists to make it easier to connect with other parents of children with cerebral palsy.
March 3
KerryLiz is now a member of PA Medical Home Initiative for Parents
March 3

Comment Wall (9 comments)

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At 10:34am on April 9, 2009, Ana and Joel Emilio said…
The Conference went very well. I hope to be able to comweback next year.
At 10:24pm on April 1, 2009, Krisi said…
We vacation at ocean city Maryland. He loves the boardwalk and all of the music performers. Since Alex uses a wheelchair, the bike is great for getting his legs moving!!

:) Krisi
At 7:53am on March 16, 2009, Ana and Joel Emilio said…
Are you from the Western side of the State? I will be in the Pitsburgh area today. I am going to the PEAL Conference.
At 9:18pm on March 5, 2009, Krisi said…
I also have an 11 year old with cerebral palsy. We went to Disney for Make a Wish....loved it!!!!

Krisi
At 10:41pm on March 4, 2009, Valerie said…
Hi. So nice to meet you!!
At 10:32pm on March 4, 2009, ANNIE said…
I SPEAK A LITTLE ENGLISH AND WISH I NEW MORE OR ENOUGH OF ENGLISH.
At 10:09pm on March 4, 2009, ANNIE said…
BUENAS NOCHE KERRY LIZ HABLAS ESPANOL.
At 6:26pm on March 4, 2009, ANNIE said…
welcome
At 9:30pm on March 3, 2009, AprilG said…
Hello Kerry. Welcome to the group.

Profile Information

Do you live in Pennsylvania?
Yes
What PA County do you live in?
Allegheny
(Please select all that apply) I am:
A parent or caregiver to a child or youth with special health care needs
Please share some key areas of interest in the field of child health (for example, transition, autism, special education, etc.)
transition, special education, cerebral palsy, adjustment disorder
If you'd like, please share a little bit about yourself and your child/children.
I have 4 kids ranging in age from 16 to 9. My eleven year old has Cerebral Palsy, which is why I find myself here.
If you'd like, please share something fun, cool, or notable about yourself.
We love Riding for the Handicapped of Western PA. We love Harry Potter, reading, good movies, and figure skating.

Sarah LOVES Riding for the Handicapped of Western PA. This photo is from 2007-2008 riding year, when she won a second place ribbon at the annual horse show.

This is a photograph of Sarah' Make a Wish trip, 2002. She was treated like a princess, indeed, and we all had a wonderful time!

This is my family at Halloween, 2007, at Idelwilde Park's Halloween Boo! It was such fun!



KerryLiz's Blog

KerryLiz

Children's Institute

My darling gal finally has her casts off after her surgery, but it has been a horrible, pain-filled, sleep-deprived couple of weeks. The surgeon sees no physiological reason for Sarah's discomfort, and I do see a tremendous amount of fear in her. I understand what a crippling force fear can be, and I have been racking my brain to come up with ways to help her through this. She is receiving very little therapy through school (educationally, I suppose it is not important that a little girl walk, r… Continue

Posted on March 30, 2009 at 9:08pm — 5 Comments

KerryLiz

Disney on Ice

My husband had this bright idea - let's take the kids to see Disney on Ice at the Mellon Arena! The littlest two are VERY excited about this outing tomorrow, and the older two are amused apparently. My Sarah had a surgery on 30 January, a bilateral subtalar stabilization, which results in her casted feet and an even more limited mobility. When we were escaping-um, released- from St. Margaret's Hospital, Sarah saw a billboard advertising the event, and even through her pain meds, she smiled and e… Continue

Posted on March 5, 2009 at 12:19am —

KerryLiz

Make a Wish

In 2002, Sarah underwent her 3rd major surgery. Her leg bones needed to be reconfigured again. She had a follow up appointment with her pediatrician which seemed to go well, but later that week, I received a telephone call from Make a Wish saying that Sarah was recommended by her doctor for their services. I nearly passed out. You see, I believed that Make a Wish only provided Wishes for terminally ill children. After the nice lady on the other end of the line helped me to stop hyperventilating… Continue

Posted on March 4, 2009 at 1:17am —

KerryLiz

some resources

Here are just a few websites that I thought might be of some use to fellow parents who have little ones with Special Needs. I have found these organizations or pages to be of use. I will add more as I think of them, and I welcome other information of help, if you know of any.

http://www.ucp.org/ has many individual sites for individual states. They offer educational programming and an opportunity to network.

http://www.easter-seals.org/ Easter Seals of Western PA can be reached at 412-281-7241… Continue

Posted on March 4, 2009 at 1:12am —

KerryLiz

Riding for the Handicapped of Western Pennsylvania

Riding for the Handicapped of WPA is a tremendous resource that I thank the Lord that we found! My Sarah benefits tremendously from her weekly visit to Ford Farm Stables in Allison Park, Pennsylvania, where volunteers headed by a saintly woman, Toots Abbott, gently guide the children, all of whom are in some way handicapped, through their therapapeutic riding. The horses and ponies are all gentle creatures whose muscles and warmth loosen our children's often overly tight muscles. The kids have t… Continue

Posted on March 4, 2009 at 12:57am —

 
 
 

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