PA Medical Home Initiative for Parents

hello, i am a 26yr old sister of three special needs brothers. our mother just passed away from stage 4 colon/rectaul cancer, and i am in the proccess of fighting for the 16yr in court for custody. the court is having me take classes for kidship care but honestly that isnt the paper knowlege that the jugde is going to be satifited with. i am very well aware of how to care for my brother, i have 4 specail needs brothers. my mother adopted them all. anyhow, any web site you know of that pertains to care of and knowelge of children with cp, track,g-tube, shunt, also he is blind and servely md. i would be very grateful of any sites. thanks .

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www.ucp.org -united cerebral palsy network
www.ninds.nih.gov -national institute of neurological disorders and stroke
www.nichcy.org -national information center for children and youth with disabilities
www.navh.org -national association for visually handicapped
www.ldanatl.org -learning disabilities association of america
www.afb.org/afb -american foundation for the blind
www.cec.sped.org -council for exceptional children

there is also a book called: "Children with Cerebral Palsy: A Parents' Guide" - edited by Elaine Geralis

You should also be able to contact your brothers doctor and have them send you information pertaining to his specific needs/care.

I would also look into the "ARC" it is an advocacy program. Good luck, let me know if I can help you in any other way.

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www.kidstogether.org also has educational information as well.

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